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Tag Archive: Living with a chronic illness


  1. Power to the Patient

    Blog_PowerToPatient_5-10

    As a patient coping with a health event, you have to deal not only with your body changing drastically — sometimes suddenly and sometimes gradually — but also with a significant loss of self. Your independence is often compromised, and family members cluck and fret and frequently talk over you to your doctors. They mean well, but sometimes your caregiving team may be hindering you more than helping. Maintaining Your Sense of Self. Despite the circumstances and stress of being ill, it is vital that as a patient, you maintain your sense of self. You are not helpless. You are [...]


  2. How do you treat your child like a “normal” kid after treatment for a serious illness?

    How long does a recovering child need special treatment?

    Is “normal” just a setting on the washing machine? Is it possible to treat a child who has undergone cancer treatment as a normal kid? My immediate reaction is absolutely not! Even after completing treatment almost four years ago, I cannot do it no matter how hard I try. I vividly remember one scene in the month following our return home from St. Jude Children’s Research Hospital. My oldest son was required to attend our church’s weekly Lenten services each Wednesday evening. I accompanied him to each service. I was still in a very emotionally “fragile” state of mind. At [...]