http://blog.caringbridge.org/coping-childhood-cancer/?utm_source=rss&utm_medium=rss&utm_campaign=coping-childhood-cancer Sun, 09 Jun 2013 09:12:34 +0000 hourly 1 http://wordpress.org/?v=3.5.1 http://blog.caringbridge.org/coping-childhood-cancer/#comment-1489 Chris Fri, 08 Feb 2013 23:13:44 +0000 http://blog.caringbridge.org/?p=570#comment-1489 I was just talking to my husband about how to let our son be “normal” again, when I logged on and saw this post. I can totally relate to how you feel. Our son Jacob was diagnosed with Luekemia in May of 2011. He is still receiving monthly chemo, but has returned to school. However, I still keep him in his “bubble” at home. He just goes to school and sometimes to his brother’s sporting events. I am just so scared of him getting sick this time of year. Everytime we try to do something like a trip or visit family he seems to get sick. He had Pneumonia 24 hrs before our Make A Wish trip to Disney this past November. We were totally shocked, we were stil able to go, but needless to say we were nervous the entire time. Just visiting with family this past weekend he now has a cold and we kept him home from school. We have to think twice before taking him anywhere, movies, out to dinner, or just letting him have friends over. We always worry. I won’t even let anyone else watch him, just me and my husband. With each sniffle, cough and just looking tired, I start to worry. I don’t know that life will every be “normal” again. It will just be a new “normal”. We have about 8 more yrs to worry and hope it doesn’t come back. I just don’t know how to move on. I am always back in the hospital in my mind. We spent 8 weeks in the hospital with a serious mold infection that was life threatening. I treasured the time we spent alone with no distractions. Sometimes I just want to keep him home to just be us and hang out like we used to. I realize it’s not fair to him and he should go to school and have fun. He feels great, but how do you let them go. I would keep him in his “bubble” forever, but I have to learn to let go. Glad to know I am not alone and that these feelings are “normal”……..

]]> http://blog.caringbridge.org/coping-childhood-cancer/#comment-1470 otis Fri, 08 Feb 2013 04:20:24 +0000 http://blog.caringbridge.org/?p=570#comment-1470 your a loving and caring mother,d ont let any one take that away from you! God blss you and your family.BY the way send me some of those cute pic,

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